Georgia had a much better day Saturday, so we took advantage of having our gang altogether and in good spirits and took off to Boulder for the day to enjoy the outdoors and do some prime pumpkin pickin'. See pics below.
On the surgery front... it turns out that Mon won't work for Children's OR schedule, so the earliest option now is Tues. While that gives us some time to think thru the choice of having the shunt placement w/the newer surgeon or waiting until Dr. Handler gets back in town and having him do it on Fri (earliest possible date w/him). We'll likely make that final call tomorrow when Georgia goes in for her pre-op exam.
One other thing we have to consider and haven't mentioned yet... botox injections. While I'm sure Alicia and I could use some of that ourselves to get rid of our stress lines, botox is actually used to relieve the stiffness in Georgia's joints and muscles. Currently, Georgia has to wear a variety of braces to help maintain her range of motion w/her left wrist, fingers, thumb and ankle. Good as those braces are, she's still tightening up a bit too much and so the botox will give her some added relief by temporarily knocking out the muscles in her arm and calf. Since Georgia will be under anesthesia for the shunt we may take advantage of that time and have this procedure done at the same time. Otherwise, the poor kiddo will have to make yet another trip to the OR at a later time.
So here's the choice: 1) have the shunt placed Tues w/the new surgeon and have the botox procedure at the same time or 2) wait until next Friday for Dr. Handler to place the shunt and come back at another time for the botox injections (since rehab docs aren't available until the following week).
Given that persistent hydrocephalus is the greatest concern, we'll likely move forward w/having everything done on Tues; however, if the fluid build up is manageable for a few days, we may wait for Handler since he's one of the best there is and knows G's situation better than anyone. We'll of course keep you posted as to what we decide.
In the meantime, here are some videos from yesterday's outing - a much needed break away from thinking about hospitals and surgical options.
Running around Cottonwood Farms
decisions, decisions
Couple of cute swingers in Boulder
Capping off great day w/ice-cream!
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