Dear friends and family -



Thanks for visiting Georgia's page! As most of you know, Georgia had been struggling with worsened seizures since January 2010. She subsequently underwent seizure surgery which resulted in a functional hemispherectomy on July 21st at Denver Children's Hospital. We really appreciate all of the kind thoughts and prayers that you have showered on her (and us!) - please keep them coming! We hope this website/blog can be an easy way for us to keep everyone informed on how Georgia is doing. Bare with us...we're new at this!


Love - Rick and Alicia







Saturday, July 31, 2010

2-a-days

Hard core rehab training has kicked in! Today was Georgia's first real session of her 2-a-day training. It's actually eventually going to be more like 6-a-days: 2 each of physical therapy (PT), occupational therapy (OT) and speech therapy. They run a tight ship here at TCH training camp. Going to take a bit of pacing though.

Today, Georgia got in 2 combined PT/OT session and one for speech. In PT, she did some swinging and sliding which are 2 of her favorite activities so she was thrilled. Not the same as at our local playground, but good enough for now. She was so hungry and exhausted at lunch that she inhaled her mac n cheese a bit too quickly and yaked again. 1st time she vomited in over 24hrs though so not too shabby! Thanks Cathy D for helping with the clean-up. Killer naps today too - 2 x 2hr snoozes and still sleepy enough at bedtime to hit the sack. Though admittedly we have melatonin and cholral hydrate to help get her down and keep her down since one of her seizure medications makes our little love a bit of an insomniac. Not so fun to have a wide awake toddler from 3-5AM (this has been happening at home for quite a while). We thought surgery may have resolved this until 2 nights ago. She's not a fussy wide-awake toddler, just WIDE awake (as compared to her very groggy parents). One of the neurosurgery fellows suggested in rounds to perhaps give her a warm bath at that time to relax her. She obviously doesn't have kids. We scoffed and told her to come do it herself if that was her best suggestion :)

We had lots of visitors today too which was great. Quick shout out to the Lee's, our good friends from Boston who were heading to the mountains for a family reunion. What dears to make a hospital stop on their way to vacation - thanks guys! Thanks also to Cathy, Lisa and Dante for coming by and making our little one smile.

And have to give little sister Lillian some props too...she's rolling! Knuckles and a leftie high five from your big sis.

We've had such good feedback on the videos so lest we disappoint, here are a few hightlights of the day. Thanks to everyone for checking in on Georgia so frequently!

Military drills at PT/OT:

Loving the slide! (editorial note: this was her 3rd attempt...1st 2 had stronger climbing)

3 comments:

  1. Love the videos!!! She really is a trooper!!! Our continued prayers for her as she rehabs!!!
    Hugs from Bennettwood Ct.
    Jack and Dee

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  2. I am so thrilled to see G's progress! She is truly amazing!!! She still sings a great "Itsy, Bitsy spider..." ...and always reminds me of the words!!!
    Hugs and kisses!!! and knuckles!
    Cathy D

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  3. Wow - she is doing amazing! I am super impressed and inspired. I am sending good thoughts and prayers her way for a speedy recovery!

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