Started rough again today but we ended on the up and up. So much of our day was unfortunately spent anticipating the vomiting again. Yeah, fun stuff. Had a number of pukes this AM, enough so that it bought her an MRI to make sure she was not accumulating fluid in her head. She's not....schwwweew. Also bought her a urine culture (via cath, poor thing, looks clear so far which is good) and yet another IV since her 3rd one also blew last night. Can a 3 yr old take much more in a day? Yup - an enema! Seriously!? Gotta make sure the lower pipes are clear and not contributing to the vomiting (good to go now, so to speak). We are in utter amazement with how much Georgia is putting up with...seriously, she wimpers and squirms a bit through all of this but then settles and blows kisses to all of the torturers as they leave. The rest of us would surely be sending other gestures I'm sure. What a trooper!
By the end of the day though, Georgia had stood again at least 4 times during PT (with us holding a basin close by of course), sang us a few songs (Twinkle, Twinkle was top of the list), played with her sister, met a new friend down the hall and FINALLY kept meds and a fine dinner of plain noodles, mandarin oranges and a smoothie down. A few videos to capture the highlights below. Georgia, you are truly a ROCKSTAR!
Standin' tall
Rollin' with Lil
p.s. In case you're counting, it's post=op day #8.
What a super big sister Miss G continues to be. Seeing her beautiful smile just warms my heart. Sending hugs! I hope everyone got a little rest last night.
ReplyDeleteShe is incredible!!!!
ReplyDeleteRick & Alicia, We have been praying for you since we found out about sweet Georgia and her journey. Please know that we will continue to pray and believe that she will come through this stronger than ever. All of our love and blessings, David, Katie & Liam Barry
ReplyDeleteAmazing !!
ReplyDeleteGood night G! Hope you and all the G's catch some Z's! Will check back in in the morning! XOXOXOX Go G Go G Go!!!
ReplyDeletekeep it up!
ReplyDelete